Why join?
Why join?
Your participation could promote understanding of your disease in Germany
The Data Nexus platform aims to reshape clinical research by bringing together clinical and everyday patient health data in a privacy-compliant way.
Patient data is often not fully utilised for clinical research because it is collected by different organisations and systems and they do not share it in a digital and processable way.
By participating in the Data Nexus platform, you can enable the linking of this data to give a more complete picture of your disease course in Germany. This creates unique, novel opportunities for clinical and scientific research.
“It’s negligent that data is not being used for research purposes…”
Rheumatoid Arthritis Patient, Germany
Data Nexus Platform Goals
The main objective of Data Nexus is to enable new approaches to patient-centric scientific and clinical research based on health data.
This should contribute to early detection and better disease progression, thus improving patient outcomes and providing insights needed for new medical developments.
In particular, Data Nexus supports the answering
of the following research questions:
What are the causes and early features of disease development?
Can efficacy and possible adverse effects of therapies be predicted?
How can the care of patients with their disease be secured and improved?
Do you have more questions about ZS Data Nexus? See FAQs
How long will my data be stored?
Your patient data will be stored and used for analysis for 30 years from the date of your consent, unless you have revoked it beforehand. The technological solution we have developed ensures that the duration of data storage and the associated deletion periods are adhered to.
Will I be contacted / spammed by email or phone?
Subject to your consent, you may be contacted to be informed of research findings that are material to your continued participation or to obtain additional information, for example, to inform you of new research or to obtain your consent to link your patient:inn data with medical information from other databases. Otherwise, you will not be contacted. Your contact information will not be shared with third parties, such as insurance companies or your employer.